"The Simpler, The Better"- I, Be...
- A Gringo Skateboarder, who has Narcolepsy with Cataplexy and Idiopathic Central Sleep Apnea; Complexicated Health.
Enter the Realm/s and/or Dimension/s of I. -
'Siri' black-eye's I (body) an I (mind)... (absolutely true, and obnoxious, story)
In case who ever you are, reading this, are unfamiliar with what is Narcolepsy with Cataplexy, specifically what is Cataplexy; the following is necessary and a definition of Cataplexy, for you:
Cataplexy is an intrusion of REM(*a), related to the non-restorative sleep that a person with Narcolepsy experiences throughout their life, and is an episode of minimal(*b) to complete temporary(*c) paralysis(*d); the episodes of Cataplexy are triggered from often entirely unpredictable interactions which are emotion based.
Each and every person that has Narcolepsy with Cataplexy is effected somewhat, vastly, differently(*e); yet some with Narcolepsy do not experience Cataplexy and rather fall asleep uncontrollably, that is without a triggering of paralysis.
Narcolepsy has to do with an Auto-Immune(*f) attack of the important non re-producable hormone/neurotransmitter/neuropeptide(*g) within one's hypothalamus and brain-stem; it is then after such, that one's ability to sleep is severely effected in a plethora of, very difficult, ways.
Being unable to achieve, what is important and crucial for any one, getting 'restorative' sleep(*h).
(*a) - (Rapid Eye Movement, the 'so-called' Dream State, sleep stage #5 which takes typically around 60-90 minutes to reach for a person without Narcolepsy)
(*b) - (perhaps a flicker or spasms, weakness of a muscle or set of muscles)
(*c) - (for I an I, this is usually 5-15 seconds before the muscles return)
(*d) - (complete paralysis - loss of muscle tone - fully conscious with hearing and sight plus the ability to think)
(*e) - (for some Cataplexy can last hours, due to falling into actual dream state, deep sleep)
(*f) - (at some point, sometimes related now to a strep infection and/or certain strains of the flu)
(*g) - (curcial at the Interface of Sleep, Energy Homeostasis, and Reward System - far and broad)
(*h) - (an example, is an average 8 hour sleep for someone with Narcolepsy results in perhaps what would feel like 3 to 5 hours of sleep for persons without Narcolepsy)
Now onto the story:
It was the night that the Mother of I an I had recieved her new iPhone 4S. The Mother had not used the iPhone assistant named 'Siri' yet.
After some time was spent attempting to figure out how to even reach, or talk to, 'Siri;' it was figured out that holding the button down is how to do it.
So, once 'Siri' ask, how she can help. The question asked by the Mother is "Siri, what is the temperature?"
'Siri' responds with the temperature. Then, the Mother asks, "Siri, what is that temperature in Celcius?"
And then, asks "what is the temperature in Managua, Nicaragua?"
And then again, asks "what is that temperature in Celcius?"
I an I was standing and watching, listening to the questions and thinking; there must be a better, more interesting, question to ask 'Siri.'
So, I an I suggest that she "ask Siri, What is Cataplexy?"
So, the Mother asks "Siri, what is Cataplexy?"
And 'Siri' responds, "Let me see, Hu-Hongs Mongolian Grill, which is located at..."
Immediately, without hardly a muscle flicker (which is usually some sort of brief signal, Cataplexy is occurring), the knees of I an I buckle, giving out.
Awkwardly, I an I collapse, smacking the floor; not exactly face first at all, but landing somewhat side-ways with the face of I an I resting upon the wood floor.
Being that I an I wears glasses, as I an I was without muscle control (literally paralyzed) the position I an I was in, left the edge of the glasses of I an I pressing hard against the wood floor.
This was for a good 10 to 20 seconds that I an I was down, paralyzed.
As I an I regained the muscles of I an I, it was clear that the glasses had bent somewhat and I an I could sense that they'd pressed hard against around the eye of I an I.
After bending the glasses back into a comfortable and proper position, I an I didn't think much of the ordeal; besides for how ridiculous it was, and how obnoxious it is having to live with such condition...
The following morning, I an I went to play some pick-up Ice Hockey; which is thankfully not an often trigger of Cataplexy, which is besides the point of the story.
After playing though, as I an I was returning home; the first question out of the Mother of I an I is, "Where'd you get the black eye, did you know you've got one?"
I an I think for a second and it hits, "damnit Siri..."
It wasn't bad (at least, perhaps not as bad as this photo), just obnoxious and un-necessary. Thanks Apple and you -crazy A.I.- creator's...
Page of ways to help or gift, to, me.
Many typical/standard things are difficult for me to do and/or manage. Describing pieces of that all, is a part of this web venture.
I hopes: To provide something (perhaps creative & possibly for some, of real importance and/or value) through writing (photos, videos, too) on my experience/s, perspective/s & interest/s (with links).
To, in return find &/or create some source of money seems basic, logical & such is a necessity.
To set out with any profiting intent, though, is bothersome.
This is all, for me a leap, in motion.
It'll come together, hopefully simply, in time. As Time Does Tell...
Please Be, Observe, & Contemplate; All!
Doing so, is beyond fascinating.