Did a similar compilation of comments, around a year ago on my Instagram.
Am very active online on some different platforms, I do avoid using FB much at all, these comments are all from a different, and more anonymous, platform.
Compiled what are a month of some positive comment responses that I’ve received, to a few comments I’ve left responding to others’ online, asking questions about and/or discussing, Narcolepsy.
Will say that the r/Narcolepsy subreddit is in my opinion, the very best resource out there for learning about the disease outside of medical literature and in fact you’ll find what is actual living patient’s experiences along with perspectives; it is invaluable.
The Discord Narcolepsy channel is quite good as well, though it is more chatting than there being discussions in depth.
3/6/24
“Oh my God this explains a ton.”
3/5/24
“Thank you for sharing”
3/3/24
“Thank you so much for the detailed response!”
3/2/24
“I always stop and read your comments. I’ve come across you over the years, on various platforms. You are a very valuable contributor and I really appreciate your knowledge and willingness to share and help others. I just screenshotted half of your comment to go back and look up :)”
3/2/24
“You’re comment really matched some of my experiences”
3/2/24
“I also relate to your experiences with doctors.”
3/2/24
“Well, your ‘venting rant’ is spot on and relatable.”
2/28/24
“I always appreciate your responses. They are very well thought out and often backed by studies you’ve read- you can tell you dig deep into whatever the latest understanding is.
Just wanted to say that. 😉 Thanks for sharing your understanding frequently.”
2/27/24
“Thank you for saying this!”
2/27/24
“Had we known…
I appreciate you-“
2/27/24
“Ah I see! Thank you for that. I had never heard that there is discussion of narcolepsy as an IACC before, mostly just because I’m not very familiar with narcolepsy in general. Thank you very much for sharing and explaining that.”
2/27/24
“Wow that’s astonishing.”
2/26/24
“This really has me thinking.”
2/26/24
“I agree with this explanation. this is very good tips.”
2/20/24
“That’s so interesting – thank you.”
2/20/24
“Thank you for the comprehensive explanation!”
2/17/24
“You nailed it.”
2/15/24
“This was super informative thanks OG”
2/14/24
“thank you!!”
2/10/24
“This is so beautifully said, I’m saving your comment for future reference lol”
2/9/24
“Thanks! And that’s a good point too.”
2/9/24
“That’s so interesting”
2/4/24
“This person has a point.”