Narcoplexic – Independent Sleep Advocate

Out there Dreaming

January 31, 2026

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27 Comments

  1. Erin Foley Moudry April 11, 2025

    Very well written and a message that needs to reach more in the medical community for sure.

    • sol.briggs April 12, 2025 — Post Author

      Thank you for commenting! I fully agree, not just awareness but actual clarity is needed. Feel free to share this with your doctors or whomever out there.

  2. Stephanie Shargel April 12, 2025

    You just said exactly what my experience has taught me. I clearly have cataplexy symptoms, but because I dont fit the narrow definitions, I dont get to have an official diagnosis. My personal experience is that this is far beyond a sleep issue. Neural communication and autoimmune are big players in my symptoms. Thank you for putting to words what represents so many of us.

    • sol.briggs April 15, 2025 — Post Author

      Thank you for commenting!
      The diagnosis path can be so difficult, and boy is it murky.
      I hope that you can find some expertise out there, and ways to improve the situation.
      The disease really is more than a sleep issue, far far more.

      My efforts are a labor of love, as I am passionate towards the subject; while I am fascinated by it, as well, especially Cataplexy.

  3. Julie Miller April 12, 2025

    This is the most clear look into the neurological challenges faced with Narcolepsy. After years of trying to get neurologists to address or rather understand the neurological challenges of this disease as well as the EDS has been challenging. The overall attitude really is if we treat with drugs to sleep well everything is perfect in the day. No that stamp is not nearly the whole picture. Brilliant work.

    • sol.briggs April 15, 2025 — Post Author

      Thanks for commenting, and the kind words!
      I appreciate the feedback.
      Totally agree with you.

      I’d go as far as saying that even the top experts in the field, don’t fully grasp the entirety of the lived human experience.
      They’ve come a long way, and the science is profoundly helpful, but it is about ‘the why and how,’ while not so focused on ‘the what.’

      You may have seen the ‘Narcolepsy Symptom Severity Range Tool’ (NSSRT) that I created.

      The visuals of it alone (which I just added an updated image to it) shed light towards the profound overlap and interplay of the core symptoms; which make this disease so difficult on really, all fronts.

      And the NSSRT is not even touching on the various symptoms that go far beyond the core dysfunctional REM symptoms of the disease.

  4. Ang F April 18, 2025

    Great article that helped me to feel seen. I have narcolepsy and cataplexy. I’ve battled it my entire life and have struggled to find support in anyone let alone my own family. It’s a real tough pill to swallow that we are overlooked so often that I just gave up. I quit trying to explain it and I quit trying to participate in life as much as I can. It’s still all so exhausting.

    • sol.briggs May 9, 2025 — Post Author

      Thank you! I appreciate your comment and it really is a touch pill to swallow. Am hoping my efforts are helpful.

  5. Omelemama April 23, 2025

    Beautifully said!

  6. Beth Louise Parker May 1, 2025

    Solomon, you have really captured what I’ve never known how to explain. Thank you!

    • sol.briggs May 9, 2025 — Post Author

      Thank you! I appreciate your commenting and letting me know my efforts are not going unseen.

  7. Click here May 6, 2025

    Hi to every one, the contents present at this site are truly remarkable
    for people knowledge, well, keep up the good
    work fellows.

    • sol.briggs May 9, 2025 — Post Author

      Thank you! Am trying to put real light on the lived human experience. I appreciate your commenting.

  8. Katy Blasdell May 12, 2025

    You have put into words how narcolepsy feels. I appreciated this article very much. I have been living with this disease for most of my adult life; although, I wasn’t properly diagnosed until I was 36. I do have narcolepsy type 1. Dealing with the sleep paralysis, the hypnogogic hallucinations, sleep attacks, automatic behavior, and the cataplexy does feel as though you are dissociated with reality for sure. Trying to balance and reconcile that in your life gets to be a little on the verge of craziness. Before my diagnosis I thought I might be going insane.

    • sol.briggs May 16, 2025 — Post Author

      Thanks for commenting! Am glad to articulate it in a way that you could relate to. Trying to bring some clarity to the lived experience.

  9. Kathie Dees May 13, 2025

    Great explanations. Thank you for the awareness.

  10. Jolie June 6, 2025

    NT1 here. I’ve come across a couple of your posts now, and I really appreciate the way you write. I’ll definitely have to stay tuned in.
    I literally have finally had to get disability parking, for a number of medical reasons. The most convenient way for me to get it asap, was through my neurologist. Granted some of my other conditions are a greater concern in regards to disability parking, the need to pace myself and not have to park sometimes unreasonably far, so as to conserve energy, is still a big benefit.
    I didn’t even really try explaining that to him. He was kind of stuck on thinking I must be too tired to drive at all ever, rather than realizing it was more of a preventative measure.
    Alas, it got me a temporary placard.
    The outsider’s really don’t get it.

    • sol.briggs June 12, 2025 — Post Author

      Thanks Jolie, for commenting and coming through!
      Good work on getting the neuro to help you get the disability parking!

      For me, it’s all about supporting others, documenting perspective, and trumpeting the actual lived experience; bridging gaps and disconnect/s.
      =]

  11. MaryTee Miller June 6, 2025

    Great article. How true. Thank you.

  12. Rachel Nesmith July 18, 2025

    Absolutely 💯 Naptastic Solomon!

  13. Rachel Nesmith August 12, 2025

    Napsolutely amazing photos and precious memories.

  14. Frida September 18, 2025

    Thank you for sharing this. Found you through reddit. Inspiring me to share my story a bit more. Appreciate you.

    • sol.briggs September 18, 2025 — Post Author

      No problem at all.
      Thanks for visiting the site!
      And, do share your story, awareness is needed.
      =]

  15. Rachel Nesmith December 12, 2025

    Awesome Solomon! Really puts things inyo the right perspective and direction!

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